Living with Multiple Sclerosis (MS) can be challenging, but it doesn’t mean you have to give up your independence. Understanding the condition and implementing practical strategies can significantly enhance your ability to live a fulfilling, independent life. Let’s explore how you can navigate the complexities of MS while maintaining your autonomy.
What is Multiple Sclerosis?
Definition and Overview
Multiple Sclerosis is a chronic illness that affects the central nervous system, particularly the brain and spinal cord. It disrupts the flow of information within the brain and between the brain and body, leading to a wide range of symptoms. According to MS Australia, it affects nearly 3 billion people worldwide, and over 33,000 people in Australia.
Symptoms of MS
Symptoms of MS vary widely among individuals and can include fatigue, walking difficulties, numbness or tingling, muscle spasms, weakness, and problems with balance and coordination. Other symptoms may include cognitive changes, such as difficulty with memory and concentration. No two cases of MS are the same, and symptoms, depending on where the MS lesions develop, can manifest in many different ways.
Impact on Daily Life
The impact of MS on daily life can be significant. It can affect your ability to perform everyday tasks, participate in social activities, and maintain employment. However, with the right tools and support, many people with MS continue to live independently and productively.
Challenges of Living with MS
Physical Challenges
MS can cause a range of physical difficulties, including mobility issues, muscle weakness and fatigue. These challenges can make it harder to move around, complete household tasks, and maintain personal care.
Emotional and Mental Health Challenges
Living with a chronic illness like MS can also take a toll on your emotional and mental health. Depression, anxiety, and stress are common among people with MS, often resulting from the unpredictability of the disease and its impact on daily life.
Social and Professional Challenges
MS can affect your social interactions and professional life. Fatigue and physical limitations might prevent you from participating in social activities or fulfilling work responsibilities. It’s important to find ways to stay connected and productive despite these challenges.
Strategies for Independent Living with MS
Home Modifications
Making your home safer and more accessible is important for maintaining your independence. Consider rearranging your home to create an accessible layout. Ensure that frequently used items are within easy reach and that pathways are wide enough to accommodate mobility aids. Smart home technology, like automated lighting and voice-activated systems, can also help you manage daily tasks with greater ease and efficiency.
Removing Tripping Hazards
Clear away clutter and remove tripping hazards such as loose rugs and cords to prevent falls. Ensure pathways are clear and well-lit.
Installing Handrails and Grab Bars
Install handrails and grab bars in key areas, such as stairways and bathrooms, to provide additional support and stability.
Assistive Technology and Mobility Aids
Using assistive technology and greatly enhance your independence. Mobility aids, such as canes, walkers, and wheelchairs, can help you move around more easily and safely.
24/7 Monitored Personal Alarms
Personal alarms and monitoring systems provide an added layer of security and peace of mind. A 24/7 monitored personal alarm ensures that help is always available. With a simple button press, you can connect to an emergency response team for immediate assistance.
Fall Detection Systems
Fall detection systems automatically alert a monitoring centre if a fall is detected, ensuring prompt help even if you are unable to call for assistance.
Managing Symptoms for Better Independence
Physical Therapy and Exercise
Regular physical therapy and exercise can help manage MS symptoms and improve mobility, strength, and balance. Tailored exercise programs can make a significant difference in maintaining independence.
Medication and Treatment Options
There are various medications and treatment options available to manage MS symptoms and slow disease progression. Consult with your healthcare provider to determine the best plan for you.
Dietary Considerations
A healthy diet can play a role in managing MS symptoms. Focus on a balanced diet rich in fruits, vegetables, whole grains, and lean proteins.
Mental Health Support
Seeking mental health support, whether through counselling, support groups, or mindfulness practices, is crucial for managing the emotional impact of MS.
Building a Support Network
Family and Friends
Having a strong support network of family and friends can provide emotional support, practical assistance, and companionship.
Support Groups and Communities
Joining MS support groups and communities can help you connect with others who understand your experiences and provide valuable advice and encouragement.
Professional Caregivers and Services
Professional caregivers and services, such as occupational therapists and home health aides, can assist with daily tasks and provide specialised care.
Maintaining Emotional and Mental Wellbeing
Coping Strategies
Developing effective coping strategies is essential for managing the emotional challenges of MS. This might include setting realistic goals, practicing gratitude, and maintaining a positive outlook.
Stress Management Techniques
Stress management techniques, such as meditation, deep breathing exercises, and yoga, can help reduce stress and improve overall wellbeing.
Engaging in Hobbies and Interests
Staying engaged in hobbies and interests that you enjoy can provide a sense of purpose and fulfilment, helping to boost your mood and mental health.
The Benefits of Monitored Personal Alarms
Monitored personal alarms can be an essential tool for people living with with MS, offering a reliable safety network during emergencies or flare-ups. With the simple press of a button, the alarm instantly connects you to the MePACS 24/7 Response Centre, ensuring that help is always within reach.
Once activated, our trained monitors respond to your call within 2 minutes. They will talk to you through the alarm, assess your situation and get the right help quickly, whether it’s contacting a family member, friend, or emergency services. In the event that emergency services are required, MePACS will provide them with relevant information about your condition so your call can be prioritised as needed.
In addition to emergency situations, a monitored personal alarm can offer peace of mind for daily living. Knowing that help is readily available allows you to maintain your independence and confidence, engaging in everyday activities with less worry. This support system not only benefits you but also provides comfort to your loved ones, knowing you have a safety net in place.
Which Personal Alarm is Best for MS
MePACS offers 3 main types of monitored personal alarms: Home, mobile and Solo Connect.
The best alarm will be determined by your individual circumstances, needs and personal preferences.
Home Alarm
A small and lightweight alarm that works around the home and garden. It is completely waterproof and can be worn as pendant or on the wrist.
The Home Alarm system is reliable and very easy to use. The pendant does not need to be recharged so you can wear it 24 hours a day, even in the shower.
A Falls Pendant can also be used with the Home Alarm.
Mobile Alarm
A small portable device that you can take with you wherever you go. The Mobile Alarm comes with a 4G SIM and can be used anywhere in Australia where there’s good cellular reception. It features built-in falls detection, GPS location and 2-way voice communications through the alarm.
The Mobile alarm is sold as a bundle with the Home Alarm.
Solo Connect Alarm
The MePACS Solo Connect is a discreet and stylish personal alarm with built-in emergency response software. It comes with a with 4G SIM and can be used anywhere in Australia where there’s good cellular reception. The Solo Connect features advanced falls detection sensors, GPS location, 2-way voice communications through the device and a range of health and wellness apps*. It is activated using a touchscreen display, so best suited for people who are comfortable with technology and don’t have dexterity limitations. The Solo Connect is fully water-resistant and can be worn in the shower or swimming pool.
The Solo Connect needs daily recharging, which we recommend doing while sleeping or during times of inactivity, i.e. watching TV.
Funding for MePACS Alarms
Funding for MePACS alarms may be available to eligible clients through the NDIS or an HCP.
Personal alarms have specific funding codes within the NDIA and funding can be used from the Consumables budget for low-risk, low-cost AT, or from ‘Core supports’. The funding will depend on the setup of each participant’s plan and available funds. For more about Personal Alarms for NDIS Participants click here.
Conclusion
Living independently with MS is achievable with the right strategies, support, and mindset. By making home modifications, using assistive devices, managing symptoms, building a strong support network, and maintaining emotional well-being, you can navigate the challenges of MS and lead a fulfilling, independent life.
Life’s journey with MS may be unpredictable, but with determination and the right resources, independence is within your reach.
To find out more about which alarm is best suited to your needs, please call us on 1800 685 329
*This information does not intend to replace advice from a qualified health professional. Speak to your GP first about any health concerns.